Caudwell LymeCo Charity

Fighting Lyme and Associated Diseases


“Health is a crown that the healthy wear, though only the sick can see it.”

How do you catch Lyme disease?

Lyme disease is transmitted by tick bites. At least 3,000 people catch Lyme disease each year in Britain, which means over 8 people every day, yet many Britons don’t know how to recognise or avoid the tiny bugs which could give them a potentially life-altering disease. Find out how to protect your family and pets >>


How do you know if you have Lyme disease?

Lyme can start slowly and feel like flu, or hit people like a sledgehammer. Apart from severe exhaustion and chronic pain, it can cause life-threatening irregular heartbeat, arthritis, encephalitis (brain inflammation) and neurological problems ranging from loss of feeling and paralysis to mental confusion and memory loss. Learn to recognise the symptoms of Lyme disease >>

Does Lyme cause chronic disease?

Several thousand people in the UK are suffering chronic illness after catching Lyme disease, some of whom are too ill to return to work or lead a normal life. Whilst nerves can take years to heal after the infection has been cleared, and arthritis may never go, there are many who suffer a variety of symptoms which cannot be explained. More research is desperately needed to discover how to help them. Chronically ill patients tell their stories >>

What is LymeCo?

Some patients have Lyme disease along with co-infections, a condition which entrepreneur and philanthropist Mr. John Caudwell has nicknamed “LymeCo”. Caudwell LymeCo Charity aims to raise awareness of tick borne diseases, to support the NHS, and to improve understanding of the effect the disease can have upon patients. Mr. Caudwell generously sponsors the charity by paying all administrative costs, but the charity needs public donations in order to carry out its objectives. Help the charity >>

What is Caudwell LymeCo Charity doing?

The charity meets government figures and carries out patient surveys and, whilst Mr. Caudwell has conducted a highly successful public awareness campaign, the charity CEO is a lay-member of the NICE guidelines committee for Lyme disease. Read about Caudwell LymeCo’s activities >>

Do ticks spread other diseases, too?

Apart from Lyme, Britain’s commonest tick-borne infections are Anaplasma and Q-fever. Ticks abroad can carry a list of other infections, some of which can be deadly. Learn about tick dangers on holiday >>

Does Lyme infection cause other chronic diseases?

A number of scientists have noticed signs suggesting bacterial infection in many chronic diseases of unknown cause, including Multiple Sclerosis, Alzheimers, Chronic Fatigue Syndrome, Fibromyalgia, Autism, ALS and Motor Neurone Syndrome, amongst others. Here, Professor Montagnier, who won the Nobel Prize for discovering the HIV virus that causes AIDS, outlines some of the clues which should be researched.

Singer Avril Lavigne tells ABC News how doctors dismissed her when she caught Lyme Disease

Avril Lavigne breaks down in tears as she explains to an ABC reporter why seeking a diagnosis for Lyme disease was the worst time of her life. Being wealthy and famous gave her no protection against suffering the very same dismissal and mistaken diagnoses as so many others whose lives are brought to a standstill by Lyme disease.

Bestselling author Amy Tan talks of the devastating effects Lyme disease can have on the mind

Author of the global sensation “The Joy Luck Club” and other bestselling novels, Amy Tan describes suffering Lyme-induced hallucinations and other terrifying symptoms whilst seeing one specialist after another, desperately seeking a diagnosis. Eventually, like many Lyme sufferers, she realised for herself that she had Lyme disease when she recognised a picture of a Lyme disease rash that looked exactly like her own.