About Caudwell LymeCo Charity

What does Caudwell LymeCo do?

Find out more about what we do.

Why do we need money for research?

More than 8 people in Britain catch Lyme disease every day. Although it can cause heart attacks, acute inflammation of the brain and paralysis, we still need research to answer the most basic of questions.

For example, we know it is a bacterial infection, but we still don’t know the best antibiotic protocols to cure it. We know some people who catch Lyme disease never feel better again, but we still don’t have a test that can find out if their infection has actually been cured or not. The list of what we still don’t know about Lyme disease goes on and on.

Currently, two state-funded groups are auditing the existing research, and will produce a list of the research projects that are urgently needed.

  • The National Institute of Clinical Excellence (NICE) is producing treatment guidelines, to summarise the existing research into a concise set of instructions for GPs and other doctors on the best currently known way to diagnose and treat Lyme disease. Caudwell LymeCo’s CEO Veronica Hughes is a member of the NICE Guidelines committeeNICE will publish its final results in April 2018. They will include research recommendations.
  • The Department of Health (DH) is conducting independent enquiries into the patient experience of Lyme disease diagnosis in the UK, epidemiological evidence and making a database of all published research. Caudwell LymeCo is a stakeholder invited to consult on the DOH enquiry along with seven other patient groups. The Department of Health is expected to publish its results by the end of 2017 and they may include research recommendations.

If I donate to you, what will you do with my money?

We will save up all money raised until we have enough to fund, or donate towards, a research project. We may also use a very small amount to continue our awareness raising programme, although this has so far been done very effectively on a zero budget.

Medical research tends to be very expensive, but Caudwell LymeCo has two advantages.

Firstly, we are a registered charity which means all donations can be made tax free – you don’t have to worry about organising this, as we can claim the tax back after you have donated.

Secondly, we have a kind sponsor, Mr. John Caudwell, who pays all the operating and administrative costs of Caudwell LymeCo Charity, including staff salaries. This means that every penny donated or raised for the charity by you will be saved up to help pay for medical research, and used to educate the public.

Our legal description

Caudwell LymeCo Charity was founded:

(1.) To promote the health of sufferers of Lyme disease and associated diseases and medical conditions in the UK and beyond,

(2.) To advance the education of the general public in all areas relating to Lyme disease and associated diseases by raising awareness, providing information and educational materials and disseminating research,

(3.) To promote, sustain and increase individual and collective knowledge and understanding on the subject of Lyme disease and associated diseases and medical conditions amongst medical professionals, healthcare providers and the scientific community.

 

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