Thank you to our first marathon runner!

This September Rob Berridge ran the Windsor Half Marathon and raised over £700 for Caudwell LymeCo. He became the very first of a growing number of fundraisers who are volunteering to run marathons in aid of Lyme disease research. The money Rob raised will be spent on desperately needed research into Lyme disease. Lyme has […]

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How to check for ticks

Caudwell LymeCo was grateful to speak to one of the world’s leading experts on safe tick removal, known as Tick Man Dan. Proof of his expertise is the fact that he has personally removed more than 300 ticks from his own body, and does not have any tick borne diseases! He makes educational and entertaining […]

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EU gives Innatoss €2 million funding to develop a new Lyme diagnostic test

Caudwell LymeCo received a press release today announcing that the EU has given a €2 million research grant to Netherlands-based Innatoss Laboratories to develop an innovative diagnostic test for Lyme borreliosis. We congratulate Innatoss and wish them every success in their interesting and important work. The researchers at Innatoss have already proven their ability to […]

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NICE Guidelines Committee for Lyme Disease

Caudwell Lyme Disease CEO, Veronica Hughes, has been offered a position as a lay member of the NICE guidelines committee for Lyme disease. The committee will meet regularly for approximately the next two years, to evaluate and discuss published research on Lyme disease and use this as the basis for new, evidence-based treatment guidelines for […]

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A visit to the Rare and Imported Pathogens Laboratory

John Caudwell and Veronica Hughes visited Public Health England’s scientific campus at Porton Down in Wiltshire, including a tour of the Rare and Imported Pathogens Laboratory (RIPL) where the specialist Lyme disease testing for England and Wales is carried out at the request of NHS doctors. We met Professor Derrick Crook, Director of PHE’s National […]

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SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS

Caudwell LymeCo charity ran a survey of UK Lyme disease patients from February to April, 2016. The survey asked patients about the care they had received for their Lyme disease on the NHS. We have produced a PDF document which gives the aggregated responses to each question in the survey. Please note: The information and […]

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Giving Lyme Patients a Voice

A visit to the Health Secretary and CEO of NHS England On 29th February 2016, John Caudwell and Veronica Hughes hand-delivered a selection of thirteen patient case studies to health Secretary Jeremy Hunt and to Simon Stevens, C.E.O. of NHS England. These case studies were selected to demonstrate the serious lack of care available for […]

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Add your Lyme story

Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you […]

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PATIENT SURVEY: What does Lyme disease cost the NHS?

Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results.  They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could […]

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