The All Party Parliamentary Group for Lyme disease meeting with patient representative groups

The All Party Parliamentary Group (APPG) for Lyme disease hosted a ’round table’ meeting for Lyme disease patient group representatives in the House of Commons on Tuesday 23rd January 2018. Caudwell LymeCo was represented at the meeting by the charity’s Chief Executive Veronica Hughes, to outline the charity’s requests for the parliamentary group to consider. … More The All Party Parliamentary Group for Lyme disease meeting with patient representative groups

The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

The NICE Guidelines research recommendations can be read in full here  Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to … More The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

UK Government’s Independent Enquiry into Lyme Disease

Origin of the Independent Enquiry Back in spring 2016, the founder and sponsor of Caudwell LymeCo Charity, John Caudwell, and the charity’s Chief Executive, Veronica Hughes, met Health Secretary Jeremy Hunt and the CEO of NHS England Simon Stevens to talk about the problems surrounding lack of diagnosis, lack of treatment and therefore inadequate care … More UK Government’s Independent Enquiry into Lyme Disease

Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

DISCLAIMER: Caudwell LymeCo charity shares public domain  information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. … More Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

How do you calculate the cost of suffering chronic illness?

A question for Lyme disease patients If you had the choice, would you rather A. Live for 30 more years with the Lyme disease symptoms you have now? or B. Live for just 5 more years, but in perfect health? Read on to find out why researchers have to ask people questions like this. Health … More How do you calculate the cost of suffering chronic illness?

Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

Fundraising Triathlon for Lyme disease Research

When the Wintour family found out that one of their sons, Adam, had Lyme disease, they decided to do something constructive about it. So they organised the Bowood House Triathlon. The tireless organiser, Laura, press-ganged most members of the connected Broadhurst, Wintour and Lambton families into participating – somewhat against their will, we have been … More Fundraising Triathlon for Lyme disease Research

How to raise money for Lyme disease research without giving anything!

You can now raise money for desperately needed Lyme disease research without actually donating a penny. All you have to do is some online shopping! Go to the Easyfundraising.com Caudwell LymeCo page. Sign up as a Caudwell LymeCo Charity supporter. Download the Easyfundraising browser button, so you remember to go to your shopping websites VIA the easyfundraising … More How to raise money for Lyme disease research without giving anything!