The first year UK marathon runners raise money for Lyme disease research

This April, seven volunteers will become the first in the UK ever to run marathons to raise money for Lyme disease research. All the runners are raising donations for the Caudwell LymeCo Charity research fund, and six of the seven have never run marathons before. “These runners are making a real difference by supporting Caudwell … More The first year UK marathon runners raise money for Lyme disease research

The NICE guideline for Lyme disease is now published

The National Institute for Health and Care Excellence has today published guidance on Lyme disease, for NHS doctors, for the first time. The official guideline can be read here. Our summary of the guideline and FAQ The 5-minute Caudwell LymeCo guide, What does the NICE guideline for Lyme disease say?can be read here. There is … More The NICE guideline for Lyme disease is now published

The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

The NICE Guidelines research recommendations can be read in full here  Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to … More The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

DISCLAIMER: Caudwell LymeCo charity shares public domain  information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. … More Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

How do you calculate the cost of suffering chronic illness?

A question for Lyme disease patients If you had the choice, would you rather A. Live for 30 more years with the Lyme disease symptoms you have now? or B. Live for just 5 more years, but in perfect health? Read on to find out why researchers have to ask people questions like this. Health … More How do you calculate the cost of suffering chronic illness?

Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

A new Lyme Disease urine test now available in Europe

We received the following press release today, which we reproduce in full. PRESS RELEASE Ceres Nanosciences and Innatoss Laboratories to Launch the Nanotrap® Lyme Antigen Test in the European Union The Nanotrap® Lyme Antigen Test, a direct urine test for the presence of a Lyme bacteria protein, will be made available to patients throughout Europe. … More A new Lyme Disease urine test now available in Europe

Scientific Study Sheds Light on Morgellons as an Infectious Disease

Caudwell LymeCo received a press release today about an interesting research paper just published, which reports on an association researchers have found between Morgellons disease and borrelia, the bacteria which cause Lyme disease. Morgellons disease is a poorly understood condition characterized by spontaneously occurring, slowly healing skin lesions containing multicolored filaments and accompanied by symptoms … More Scientific Study Sheds Light on Morgellons as an Infectious Disease