By John Caudwell, Chairman of Caudwell LymeCo Charity Lyme disease is one of the most serious public health threats that we face today. It is far more prevalent than people realise and is causing many different debilitating conditions, ranging from memory loss to life-threatening heart problems. For decades now, those suffering with this devastating disease … More My view on the development of a Lyme disease vaccine
Important changes are taking place in 2018 for Lyme disease patients in the UK. Treatment guidelines for Lyme disease The UK now has formal clinical guidelines for Lyme disease for the first time. The NICE guideline has made a number of small but important steps forward in the diagnosis and care of Lyme disease patients … More What do Lyme disease patients need now?
This April, seven volunteers will become the first in the UK ever to run marathons to raise money for Lyme disease research. All the runners are raising donations for the Caudwell LymeCo Charity research fund, and six of the seven have never run marathons before. “These runners are making a real difference by supporting Caudwell … More The first year UK marathon runners raise money for Lyme disease research
The National Institute for Health and Care Excellence has today published guidance on Lyme disease, for NHS doctors, for the first time. The official guideline can be read here. Our summary of the guideline and FAQ The 5-minute Caudwell LymeCo guide, What does the NICE guideline for Lyme disease say?can be read here. There is … More The NICE guideline for Lyme disease is now published
The NICE Guidelines research recommendations can be read in full here Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to … More The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES
DISCLAIMER: Caudwell LymeCo charity shares public domain information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. … More Do the Draft NICE Guidelines acknowledge chronic Lyme disease?
A question for Lyme disease patients If you had the choice, would you rather A. Live for 30 more years with the Lyme disease symptoms you have now? or B. Live for just 5 more years, but in perfect health? Read on to find out why researchers have to ask people questions like this. Health … More How do you calculate the cost of suffering chronic illness?
The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines
At Caudwell LymeCo we hear so many stories about lives ruined and the devastating effects of Lyme disease that we sometimes wonder if anyone actually recovers from this horrible illness. So we are happy to share a story with a happy ending. Above all, we want to share the very important lessons to be learned … More Interview with a Lyme disease success story
We received the following press release today, which we reproduce in full. PRESS RELEASE Ceres Nanosciences and Innatoss Laboratories to Launch the Nanotrap® Lyme Antigen Test in the European Union The Nanotrap® Lyme Antigen Test, a direct urine test for the presence of a Lyme bacteria protein, will be made available to patients throughout Europe. … More A new Lyme Disease urine test now available in Europe