The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised […]
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Fundraising Triathlon for Lyme disease Research
When the Wintour family found out that one of their sons, Adam, had Lyme disease, they decided to do something constructive about it. So they organised the Bowood House Triathlon. The tireless organiser, Laura, press-ganged most members of the connected Broadhurst, Wintour and Lambton families into participating – somewhat against their will, we have been […]
Read moreInterview with a Lyme disease success story
At Caudwell LymeCo we hear so many stories about lives ruined and the devastating effects of Lyme disease that we sometimes wonder if anyone actually recovers from this horrible illness. So we are happy to share a story with a happy ending. Above all, we want to share the very important lessons to be learned […]
Read moreHow to raise money for Lyme disease research without giving anything!
You can now raise money for desperately needed Lyme disease research without actually donating a penny. All you have to do is some online shopping! Go to the Easyfundraising.com Caudwell LymeCo page. Sign up as a Caudwell LymeCo Charity supporter. Download the Easyfundraising browser button, so you remember to go to your shopping websites VIA the easyfundraising […]
Read moreThank you to our first marathon runner!
This September Rob Berridge ran the Windsor Half Marathon and raised over £700 for Caudwell LymeCo. He became the very first of a growing number of fundraisers who are volunteering to run marathons in aid of Lyme disease research. The money Rob raised will be spent on desperately needed research into Lyme disease. Lyme has […]
Read moreHow to check for ticks
Caudwell LymeCo was grateful to speak to one of the world’s leading experts on safe tick removal, known as Tick Man Dan. Proof of his expertise is the fact that he has personally removed more than 300 ticks from his own body, and does not have any tick borne diseases! He makes educational and entertaining […]
Read moreEU gives Innatoss €2 million funding to develop a new Lyme diagnostic test
Caudwell LymeCo received a press release today announcing that the EU has given a €2 million research grant to Netherlands-based Innatoss Laboratories to develop an innovative diagnostic test for Lyme borreliosis. We congratulate Innatoss and wish them every success in their interesting and important work. The researchers at Innatoss have already proven their ability to […]
Read moreNICE Guidelines Committee for Lyme Disease
Caudwell Lyme Disease CEO, Veronica Hughes, has been offered a position as a lay member of the NICE guidelines committee for Lyme disease. The committee will meet regularly for approximately the next two years, to evaluate and discuss published research on Lyme disease and use this as the basis for new, evidence-based treatment guidelines for […]
Read moreThe UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty
John Caudwell and Veronica Hughes met Professor Chris Whitty and scientific colleagues at the Department of Health on 23rd May 2016. The purpose of the meeting was to discuss the independent enquiry into Lyme disease which Health Secretary Jeremy Hunt, and C.E.O. of NHS England Simon Stevens, have asked Professor Whitty to commission following their […]
Read moreA visit to the Rare and Imported Pathogens Laboratory
John Caudwell and Veronica Hughes visited Public Health England’s scientific campus at Porton Down in Wiltshire, including a tour of the Rare and Imported Pathogens Laboratory (RIPL) where the specialist Lyme disease testing for England and Wales is carried out at the request of NHS doctors. We met Professor Derrick Crook, Director of PHE’s National […]
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