As it’s Lyme Awareness Month, the weather is improving, and thoughts may be turning to summer holidays, this week’s blog features our top ten tips on how to best protect yourself from ticks whilst camping. Camping holidays are a fantastic way to enjoy our beautiful countryside and bring families or friends together. You can give […]
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Progress needed in patient treatment under the NICE guideline
Caudwell LymeCo has just run a survey of over 200 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we reported were based on the responses given by patients and we have not independently verified them with their doctors or diagnostic laboratories. In this blog […]
Read moreLymeCo Survey Results: Is the NICE Guideline being followed?
The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based on […]
Read moreWhat to do if you still feel ill after your Lyme disease treatment has finished
So you have been diagnosed with Lyme disease, you have had a course of antibiotics, and you still feel ill? This happens to a lot of people who catch Lyme disease. If you don’t know what to do, read on. 1. Ask your doctor if you need a second course of antibiotics Return to your […]
Read moreCase Study – patient shares rare symptoms of Lyme disease
Last month, Lyme disease sufferer, Charlotte Pegg wrote to us to share some of the neurological symptoms that she’d been suffering from. She was keen to raise awareness of the more rare parts of the illness, so that anyone who experiences the same may spot them for what they are, preventing any delay in diagnosis: […]
Read moreWhat to do if you’ve just been diagnosed with Lyme disease
So you’ve just been diagnosed with Lyme disease. Now what? 1. Don’t panic! The amount of doom and gloom about Lyme disease on the internet may make you think you have something worse than anthrax. Just remember that more than half of people who catch Lyme disease recover completely, and even a sizeable proportion of […]
Read moreWhat to do if you think you might have Lyme disease
If you have just become ill Time is of the essence. Delaying a visit to the doctor can make the difference between full recovery and chronic symptoms, so see the doctor right away if you suspect Lyme disease. 1. If you have been bitten by a tick, tell your doctor the details If you removed […]
Read moreWhat is the Quality Standard for Lyme disease?
New objectives on Lyme care NICE has launched a new project to develop a quality standard that will define areas for quality improvement for Lyme disease care on the NHS, and Caudwell LymeCo’s Chief Executive Veronica Hughes was asked to join the committee as a specialist on Lyme disease. The committee, whose members included doctors, […]
Read moreQuality standards for Lyme disease treatment and correcting drug dosages
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the […]
Read moreA good news story – help us spread the message
As many of you know, our founder and spokesman John Caudwell has given regular television and newspaper interviews on the topic of Lyme disease. He found the courage to open up about the suffering that this disease has caused eleven members of his family. He has even shared the heartbreaking story of his son Rufus, […]
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