EU gives Innatoss €2 million funding to develop a new Lyme diagnostic test

Caudwell LymeCo received a press release today announcing that the EU has given a €2 million research grant to Netherlands-based Innatoss Laboratories to develop an innovative diagnostic test for Lyme borreliosis. We congratulate Innatoss and wish them every success in their interesting and important work. The researchers at Innatoss have already proven their ability to […]

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NICE Guidelines Committee for Lyme Disease

Caudwell Lyme Disease CEO, Veronica Hughes, has been offered a position as a lay member of the NICE guidelines committee for Lyme disease. The committee will meet regularly for approximately the next two years, to evaluate and discuss published research on Lyme disease and use this as the basis for new, evidence-based treatment guidelines for […]

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A visit to the Rare and Imported Pathogens Laboratory

John Caudwell and Veronica Hughes visited Public Health England’s scientific campus at Porton Down in Wiltshire, including a tour of the Rare and Imported Pathogens Laboratory (RIPL) where the specialist Lyme disease testing for England and Wales is carried out at the request of NHS doctors. We met Professor Derrick Crook, Director of PHE’s National […]

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SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS

Caudwell LymeCo charity ran a survey of UK Lyme disease patients from February to April, 2016. The survey asked patients about the care they had received for their Lyme disease on the NHS. We have produced a PDF document which gives the aggregated responses to each question in the survey. Please note: The information and […]

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Giving Lyme Patients a Voice

A visit to the Health Secretary and CEO of NHS England On 29th February 2016, John Caudwell and Veronica Hughes hand-delivered a selection of thirteen patient case studies to health Secretary Jeremy Hunt and to Simon Stevens, C.E.O. of NHS England. These case studies were selected to demonstrate the serious lack of care available for […]

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Add your Lyme story

Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you […]

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PATIENT SURVEY: What does Lyme disease cost the NHS?

Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results.  They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could […]

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Meeting with Jeremy Hunt and Simon Stevens

BY JOHN CAUDWELL My Lyme Chief Executive, Veronica Hughes and I met Health Secretary Jeremy Hunt and the CEO of NHS England Simon Stevens to talk about the current problems surrounding lack of diagnosis, lack of treatment and therefore lack of care for LymeCo Disease patients in the UK. I spoke about the poor performance […]

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Daily Mail Report

A Daily Mail article published on 12th December 2015 quotes John Caudwell as saying: “I am crystal clear this is one of the most dangerous illness to mankind today. Lyme disease is damaging hundreds of thousands of lives.” John’s very brave decision to put his family’s suffering in the limelight to help others is given […]

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