The NICE Guidelines research recommendations can be read in full here Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to […]
Read moreUK Government’s Independent Enquiry into Lyme Disease
December 2017 An independent enquiry into Lyme disease, commissioned by Jeremy Hunt on behalf of the Department of Health, has just been published. Origin of the Independent Enquiry Back in spring 2016, the founder and sponsor of Caudwell LymeCo Charity, John Caudwell, and the charity’s Chief Executive, Veronica Hughes, met Health Secretary Jeremy Hunt and […]
Read moreDo the Draft NICE Guidelines acknowledge chronic Lyme disease?
DISCLAIMER: Caudwell LymeCo charity shares public domain information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. […]
Read moreResearch Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines
The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised […]
Read moreFundraising Triathlon for Lyme disease Research
When the Wintour family found out that one of their sons, Adam, had Lyme disease, they decided to do something constructive about it. So they organised the Bowood House Triathlon. The tireless organiser, Laura, press-ganged most members of the connected Broadhurst, Wintour and Lambton families into participating – somewhat against their will, we have been […]
Read moreInterview with a Lyme disease success story
At Caudwell LymeCo we hear so many stories about lives ruined and the devastating effects of Lyme disease that we sometimes wonder if anyone actually recovers from this horrible illness. So we are happy to share a story with a happy ending. Above all, we want to share the very important lessons to be learned […]
Read moreHow to raise money for Lyme disease research without giving anything!
You can now raise money for desperately needed Lyme disease research without actually donating a penny. All you have to do is some online shopping! Go to the Easyfundraising.com Caudwell LymeCo page. Sign up as a Caudwell LymeCo Charity supporter. Download the Easyfundraising browser button, so you remember to go to your shopping websites VIA the easyfundraising […]
Read moreThank you to our first marathon runner!
This September Rob Berridge ran the Windsor Half Marathon and raised over £700 for Caudwell LymeCo. He became the very first of a growing number of fundraisers who are volunteering to run marathons in aid of Lyme disease research. The money Rob raised will be spent on desperately needed research into Lyme disease. Lyme has […]
Read moreHow to check for ticks
Caudwell LymeCo was grateful to speak to one of the world’s leading experts on safe tick removal, known as Tick Man Dan. Proof of his expertise is the fact that he has personally removed more than 300 ticks from his own body, and does not have any tick borne diseases! He makes educational and entertaining […]
Read moreEU gives Innatoss €2 million funding to develop a new Lyme diagnostic test
Caudwell LymeCo received a press release today announcing that the EU has given a €2 million research grant to Netherlands-based Innatoss Laboratories to develop an innovative diagnostic test for Lyme borreliosis. We congratulate Innatoss and wish them every success in their interesting and important work. The researchers at Innatoss have already proven their ability to […]
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