The UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty

John Caudwell and Veronica Hughes met Professor Chris Whitty and scientific colleagues at the Department of Health on 23rd May 2016. The purpose of the meeting was to discuss the independent enquiry into Lyme disease which Health Secretary Jeremy Hunt, and C.E.O. of NHS England Simon Stevens, have asked Professor Whitty to commission following their … More The UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty

A visit to the Rare and Imported Pathogens Laboratory

John Caudwell and Veronica Hughes visited Public Health England’s scientific campus at Porton Down in Wiltshire, including a tour of the Rare and Imported Pathogens Laboratory (RIPL) where the specialist Lyme disease testing for England and Wales is carried out at the request of NHS doctors. We met Professor Derrick Crook, Director of PHE’s National … More A visit to the Rare and Imported Pathogens Laboratory

SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS

Caudwell LymeCo charity ran a survey of UK Lyme disease patients from February to April, 2016. The survey asked patients about the care they had received for their Lyme disease on the NHS. We have produced a PDF document which gives the aggregated responses to each question in the survey. Please note: The information and … More SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS

Add your Lyme story

Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you … More Add your Lyme story

PATIENT SURVEY: What does Lyme disease cost the NHS?

Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results.  They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could … More PATIENT SURVEY: What does Lyme disease cost the NHS?