John Caudwell and Veronica Hughes met Professor Chris Whitty and scientific colleagues at the Department of Health on 23rd May 2016. The purpose of the meeting was to discuss the independent enquiry into Lyme disease which Health Secretary Jeremy Hunt, and C.E.O. of NHS England Simon Stevens, have asked Professor Whitty to commission following their … More The UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty
John Caudwell and Veronica Hughes visited Public Health England’s scientific campus at Porton Down in Wiltshire, including a tour of the Rare and Imported Pathogens Laboratory (RIPL) where the specialist Lyme disease testing for England and Wales is carried out at the request of NHS doctors. We met Professor Derrick Crook, Director of PHE’s National … More A visit to the Rare and Imported Pathogens Laboratory
Caudwell LymeCo charity ran a survey of UK Lyme disease patients from February to April, 2016. The survey asked patients about the care they had received for their Lyme disease on the NHS. We have produced a PDF document which gives the aggregated responses to each question in the survey. Please note: The information and … More SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS
A visit to the Health Secretary and CEO of NHS England On 29th February 2016, John Caudwell and Veronica Hughes hand-delivered a selection of thirteen patient case studies to health Secretary Jeremy Hunt and to Simon Stevens, C.E.O. of NHS England. These case studies were selected to demonstrate the serious lack of care available for … More Giving Lyme Patients a Voice
Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you … More Add your Lyme story
Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results. They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could … More PATIENT SURVEY: What does Lyme disease cost the NHS?
BY JOHN CAUDWELL My Lyme Chief Executive, Veronica Hughes and I met Health Secretary Jeremy Hunt and the CEO of NHS England Simon Stevens to talk about the current problems surrounding lack of diagnosis, lack of treatment and therefore lack of care for LymeCo Disease patients in the UK. I spoke about the poor performance … More Meeting with Jeremy Hunt and Simon Stevens