Giving Lyme Patients a Voice

A visit to the Health Secretary and CEO of NHS England On 29th February 2016, John Caudwell and Veronica Hughes hand-delivered a selection of thirteen patient case studies to health Secretary Jeremy Hunt and to Simon Stevens, C.E.O. of NHS England. These case studies were selected to demonstrate the serious lack of care available for […]

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Add your Lyme story

Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you […]

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PATIENT SURVEY: What does Lyme disease cost the NHS?

Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results.  They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could […]

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Meeting with Jeremy Hunt and Simon Stevens

BY JOHN CAUDWELL My Lyme Chief Executive, Veronica Hughes and I met Health Secretary Jeremy Hunt and the CEO of NHS England Simon Stevens to talk about the current problems surrounding lack of diagnosis, lack of treatment and therefore lack of care for LymeCo Disease patients in the UK. I spoke about the poor performance […]

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