Many Lyme disease patients have other chronic infections, which seem to play a significant role in their symptoms and may be the reason why some patients are very difficult to cure. These various infections make up the chronic condition Mr. John Caudwell has nicknamed “LymeCo”. A co-infection survey Caudwell Lyme Disease is running the first … More INITIAL SURVEY RESULTS: Lyme disease co-infections
Caudwell LymeCo charity ran a survey of UK Lyme disease patients from February to April, 2016. The survey asked patients about the care they had received for their Lyme disease on the NHS. We have produced a PDF document which gives the aggregated responses to each question in the survey. Please note: The information and … More SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS
Caudwell Lyme conducted a small survey in 2016, on Lyme patients’ spending on nutritional supplements and herbal medications, in collaboration with Britain’s largest patient support group, Lyme Disease UK. Please note: The information and contents of this report may not be reproduced or quoted without acknowledging Caudwell LymeCo charity as the source. The responses reported … More SURVEY RESULTS: UK Lyme patients’ spending on herbs and supplements
This short survey aims to find out the commonest co-infections that UK Lyme patients have. Some are tick-borne, and some are not. One interesting piece of information that will come out of this is how many UK Lyme patients have other tick-borne infections, confirming their likely infection by tick bite, and how many may have … More PATIENT SURVEY: What are your co-infections?
Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results. They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could … More PATIENT SURVEY: What does Lyme disease cost the NHS?