Caudwell LymeCo has just run a survey of over 200 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we reported were based on the responses given by patients and we have not independently verified them with their doctors or diagnostic laboratories. … More Progress needed in patient treatment under the NICE guideline
Our recent survey asked patients about their experience of diagnosis and treatment for Lyme disease since the NICE guideline has been published. It showed that there have been some improvements – but there are some areas which could be much better. We decided to make the last question a free text entry, so people could … More Comments by Lyme disease patients on the NICE guideline
Last week, the QSAC (Quality Standard Assurance Committee) for Lyme disease met for the second and final meeting on the quality statements that will be provided for doctors, nurses, and other clinical staff when dealing with Lyme disease. The aim of quality statements A “quality standard” contains brief action-focused statements about a specific patient experience … More NHS Quality Standard for Lyme disease at Second Stage
The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based … More LymeCo Survey Results: Is the NICE Guideline being followed?
Caudwell LymeCo began the year 2016, as soon as the charity was founded, by giving UK Lyme disease patients a voice with our survey of 500 people. The survey highlighted years of neglect for almost all our respondents, alarming delays in their diagnosis and, for most, insufficient treatment that left them unable to resume their … More Survey: Is the NICE guideline for Lyme disease being followed?
New objectives on Lyme care NICE has launched a new project to develop a quality standard that will define areas for quality improvement for Lyme disease care on the NHS, and Caudwell LymeCo’s Chief Executive Veronica Hughes was asked to join the committee as a specialist on Lyme disease. The committee, whose members included doctors, … More What is the Quality Standard for Lyme disease?