Meet Rosie, our new fundraising manager

How long have you been working in fundraising? I’ve been a fundraiser for six years now. I started as a Fundraising Administrator at Birmingham Hippodrome, where we raised money for a programme of education and outreach work with vulnerable and hard to reach communities. I worked up to Fundraising Executive level, looking after the everyday … More Meet Rosie, our new fundraising manager

UK Government’s Independent Enquiry into Lyme Disease

Origin of the Independent Enquiry Back in spring 2016, the founder and sponsor of Caudwell LymeCo Charity, John Caudwell, and the charity’s Chief Executive, Veronica Hughes, met Health Secretary Jeremy Hunt and the CEO of NHS England Simon Stevens to talk about the problems surrounding lack of diagnosis, lack of treatment and therefore inadequate care … More UK Government’s Independent Enquiry into Lyme Disease

Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

DISCLAIMER: Caudwell LymeCo charity shares public domain  information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. … More Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

Call for participants in a study on the genetics of Lyme disease

The BCA clinic and BCA Lab in Augsbug, Germany, as well as, Dr. Leona Gilbert’s Research Team at the University of Jyväskylä, Finland are conducting a study into the role of genetics in Lyme disease symptoms. They are looking for participants in the study. Caudwell Lyme Disease charity welcomes this study and urges all Lyme disease … More Call for participants in a study on the genetics of Lyme disease

SURVEY RESULTS: UK Lyme patients’ spending on herbs and supplements

Caudwell Lyme conducted a small survey in 2016, on Lyme patients’ spending on nutritional supplements and herbal medications, in collaboration with Britain’s largest patient support group, Lyme Disease UK. Please note: The information and contents of this report may not be reproduced or quoted without acknowledging Caudwell LymeCo charity as the source. The responses reported … More SURVEY RESULTS: UK Lyme patients’ spending on herbs and supplements

Lyme Protest in May

The following press release was received by Caudwell Lyme Disease. This event is not organised by the charity. Press Release On May 24th, Lady Mar will be supporting Lyme sufferers at Parliament Square in London.  They will be protesting about the current inadequate NHS test for Lyme: poor diagnosis by GP’s and insufficient treatment for … More Lyme Protest in May

Add your Lyme story

Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you … More Add your Lyme story

PATIENT SURVEY: What does Lyme disease cost the NHS?

Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results.  They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could … More PATIENT SURVEY: What does Lyme disease cost the NHS?