Tag: Lymes

NHS Quality Standard for Lyme disease at Second Stage

April 9, 2019

Last week, the QSAC (Quality Standard Assurance Committee) for Lyme disease met for the second and final meeting on the quality statements that will be provided for doctors, nurses, and other clinical staff when dealing with Lyme disease. The aim of quality statements A “quality standard” contains brief action-focused statements about a specific patient experience … More NHS Quality Standard for Lyme disease at Second Stage

‘Ladies in the Lymelight’ Fundraising Success

January 31, 2019

Our sincere thanks go to Karen & Hazel Watkins for hosting ‘Ladies in the LymeLight’ – a spectacular event which raised £2,215 for Caudwell LymeCo. The night was a celebration of Herefordshire women filled with fun, fizz and sparkle, held in memory of beautiful Fizzy Watkins, daughter of Karen and niece of Hazel, who sadly … More ‘Ladies in the Lymelight’ Fundraising Success

Meet Rosie, our new fundraising manager

November 19, 2018

How long have you been working in fundraising? I’ve been a fundraiser for six years now. I started as a Fundraising Administrator at Birmingham Hippodrome, where we raised money for a programme of education and outreach work with vulnerable and hard to reach communities. I worked up to Fundraising Executive level, looking after the everyday … More Meet Rosie, our new fundraising manager

UK Government’s Independent Enquiry into Lyme Disease

January 15, 2018

December 2017 An independent enquiry into Lyme disease, commissioned by Jeremy Hunt on behalf of the Department of Health, has just been published. Origin of the Independent Enquiry Back in spring 2016, the founder and sponsor of Caudwell LymeCo Charity, John Caudwell, and the charity’s Chief Executive, Veronica Hughes, met Health Secretary Jeremy Hunt and … More UK Government’s Independent Enquiry into Lyme Disease

Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

January 15, 2018

DISCLAIMER: Caudwell LymeCo charity shares public domain  information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. … More Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

January 9, 2018

The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

Add your Lyme story

March 11, 2016

Read patient stories This page offers some patient stories.These stories are published as submitted, and not edited or verified by Caudwell LymeCo Charity. Add your story We invite you to add your own story, by writing in the text box at the very bottom of the page. Please include information about: Symptoms that helped you … More Add your Lyme story

PATIENT SURVEY: What does Lyme disease cost the NHS?

March 7, 2016

Please note, this survey is now closed. We have received our target 500 responses and we are analysing the results.  They will be published in due course. Thank you to everyone who participated in the survey. A MESSAGE FROM JOHN CAUDWELL To all those sufferers who have confirmed diagnosed Lyme disease in the UK, could … More PATIENT SURVEY: What does Lyme disease cost the NHS?