Since the COVID-19 pandemic hit, getting access to your GP is not as easy as before, and there has been a substantial rise in virtual appointments. Many who develop a skin condition or rash are being diagnosed from a photo or video of their mark. When it comes to Lyme disease, the EM (erythema migrans) … More Helping doctors and patients with our free Lyme disease rash resource
Over the past few months, it’s been a concern of many Lyme disease charities and organisations that the similarities in initial symptoms between Lyme disease and COVID-19 could lead to a rise in undiagnosed cases, or delays in treatment. As the pandemic progresses and more is being discovered about the long term effects of the … More The short term and long term similarities between Lyme disease and COVID-19
We’ve teamed up with SimplyV, makers of the Tick Twister removal tool, to help promote and encourage the safe removal of ticks this summer. August is the middle of peak tick season and the time when the majority of UK cases of Lyme are diagnosed. Taking steps to prevent tick bites, carrying out a thorough tick check on … More Our August campaign with Tick Twister
As the UK navigates its way out of some of the restrictions related to COVID-19, there has been a huge surge in the popularity of outdoor summer schools, forest schools and activity programmes planned for the summer months. In response to this growth of young children and families spending more time outdoors, we’ve been working … More Caudwell LymeCo & Kidunk launch the Tick Detectives Initiative
Our charity’s mission is to fund research which finds a more accurate test for Lyme disease, and treatment that is able to cure every patient, all to be available on the NHS. To highlight this need for research further, and to give our followers the chance to pose some questions and learn more, we organised … More Watch our Q&A video with a Lyme disease researcher – your questions answered
A study on the incidence of new cases and the demographics of Lyme disease patients in the UK has just been published. Like the paper published by Cairns et al in the Summer of 2019, it provides evidence of increasing annual incidence of Lyme disease, and that the number of cases diagnosed in primary care … More New study finds UK Lyme disease cases diagnosed in primary care to be significantly higher than lab confirmed cases
After the success of last year, we’re once again looking for supporters to organise ‘Lymewalks’ in their communities during Lyme Awareness Month in May. What are Lymewalks? These are walks of any size and type that aim to raise the profile of Lyme disease among family, friends and community, and to raise money towards research … More Lymewalks 2020 – get involved!
We are delighted to announce that businesswoman, author and TV personality, Lara Asprey, has become an ambassador for Caudwell LymeCo Charity. She is a dating and relationship expert and CEO & Founder of Asprey Introductions, a matchmaking and introduction agency. In 2018 she became the face of brand new dating show ‘The Ultimate Matchmaker’ now … More Introducing our new Charity Ambassador
Over the last few months, there has been a number of reports, papers, and studies announced on research for improving diagnosis and treatment of Lyme disease. In this latest blog we’ll aim to give an overview of some of these studies. Disulfiram for treatment of persisting symptoms Figures from the U.S suggest around 10% – … More Round up on recent Lyme research news
Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing
There can be a lot of misunderstanding around Lyme disease – such as what it is, and how it affects people, both in the short and long term. We recently asked our social media followers what they wish other people knew about Lyme disease, and we got a wide range of responses. Some wished for … More What you wish people knew about Lyme disease
It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?
The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published
For this week’s blog feature, we’re sharing the story of Lyme patient Tracy Dopson, who wrote in to the charity with this piece on her experiences, and what she wants others to know. If you’re often asked by friends and family how you are, and you don’t know how to reply, or how to explain … More Living with Lyme disease…….and I’M FINE!
If your child has been diagnosed with Lyme disease, you may be worried about how long they will remain ill or whether there may be any permanent effects. Most people who catch Lyme disease, and are treated for it promptly, do make a full recovery. This article gives you practical advice on how to look … More How to look after a child with Lyme disease
As it’s Lyme Awareness Month, the weather is improving, and thoughts may be turning to summer holidays, this week’s blog features our top ten tips on how to best protect yourself from ticks whilst camping. Camping holidays are a fantastic way to enjoy our beautiful countryside and bring families or friends together. You can give … More Ten ways to beat the blood suckers when you go camping this summer
Caudwell LymeCo has just run a survey of over 200 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we reported were based on the responses given by patients and we have not independently verified them with their doctors or diagnostic laboratories. … More Progress needed in patient treatment under the NICE guideline
Our recent survey asked patients about their experience of diagnosis and treatment for Lyme disease since the NICE guideline has been published. It showed that there have been some improvements – but there are some areas which could be much better. We decided to make the last question a free text entry, so people could … More Comments by Lyme disease patients on the NICE guideline
The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based … More LymeCo Survey Results: Is the NICE Guideline being followed?
So you have been diagnosed with Lyme disease, you have had a course of antibiotics, and you still feel ill? This happens to a lot of people who catch Lyme disease. If you don’t know what to do, read on. 1. Ask your doctor if you need a second course of antibiotics Return to your … More What to do if you still feel ill after your Lyme disease treatment has finished