Introducing our new Charity Ambassador

We are delighted to announce that businesswoman, author and TV personality, Lara Asprey, has become an ambassador for Caudwell LymeCo Charity. She is a dating and relationship expert and CEO & Founder of Asprey Introductions, a matchmaking and introduction agency. In 2018 she became the face of brand new dating show ‘The Ultimate Matchmaker’ now … More Introducing our new Charity Ambassador

Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing

Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing

Reactions to the BMJ Open study on Lyme disease – and what’s next?

It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?

NICE Quality Standard for Lyme disease now published

The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published

Ten ways to beat the blood suckers when you go camping this summer

As it’s Lyme Awareness Month, the weather is improving, and thoughts may be turning to summer holidays, this week’s blog features our top ten tips on how to best protect yourself from ticks whilst camping. Camping holidays are a fantastic way to enjoy our beautiful countryside and bring families or friends together. You can give … More Ten ways to beat the blood suckers when you go camping this summer

Progress needed in patient treatment under the NICE guideline

Caudwell LymeCo has just run a survey of over 200 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we reported were based on the responses given by patients and we have not independently verified them with their doctors or diagnostic laboratories. … More Progress needed in patient treatment under the NICE guideline

Comments by Lyme disease patients on the NICE guideline

Our recent survey asked patients about their experience of diagnosis and treatment for Lyme disease since the NICE guideline has been published. It showed that there have been some improvements – but there are some areas which could be much better. We decided to make the last question a free text entry, so people could … More Comments by Lyme disease patients on the NICE guideline

LymeCo Survey Results: Is the NICE Guideline being followed?

The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based … More LymeCo Survey Results: Is the NICE Guideline being followed?

What to do if you still feel ill after your Lyme disease treatment has finished

So you have been diagnosed with Lyme disease, you have had a course of antibiotics, and you still feel ill? This happens to a lot of people who catch Lyme disease. If you don’t know what to do, read on. 1. Ask your doctor if you need a second course of antibiotics Return to your … More What to do if you still feel ill after your Lyme disease treatment has finished

What to do if you’ve just been diagnosed with Lyme disease

So you’ve just been diagnosed with Lyme disease. Now what? 1. Don’t panic! The amount of doom and gloom about Lyme disease on the internet may make you think you have something worse than anthrax. Just remember that more than half of people who catch Lyme disease recover completely, and even a sizeable proportion of … More What to do if you’ve just been diagnosed with Lyme disease

Survey: Is the NICE guideline for Lyme disease being followed?

Caudwell LymeCo began the year 2016, as soon as the charity was founded, by giving UK Lyme disease patients a voice with our survey of 500 people. The survey highlighted years of neglect for almost all our respondents, alarming delays in their diagnosis and, for most, insufficient treatment that left them unable to resume their … More Survey: Is the NICE guideline for Lyme disease being followed?

‘Ladies in the Lymelight’ Fundraising Success

Our sincere thanks go to Karen & Hazel Watkins for hosting ‘Ladies in the LymeLight’ – a spectacular event which raised £2,215 for Caudwell LymeCo. The night was a celebration of Herefordshire women filled with fun, fizz and sparkle, held in memory of beautiful Fizzy Watkins, daughter of Karen and niece of Hazel, who sadly … More ‘Ladies in the Lymelight’ Fundraising Success

What is the Quality Standard for Lyme disease?

New objectives on Lyme care NICE has launched a new project to develop a quality standard that will define areas for quality improvement for Lyme disease care on the NHS, and Caudwell LymeCo’s Chief Executive Veronica Hughes was asked to join the committee as a specialist on Lyme disease. The committee, whose members included doctors, … More What is the Quality Standard for Lyme disease?

Quality standards for Lyme disease treatment and correcting drug dosages

Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages