Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing
There can be a lot of misunderstanding around Lyme disease – such as what it is, and how it affects people, both in the short and long term. We recently asked our social media followers what they wish other people knew about Lyme disease, and we got a wide range of responses. Some wished for … More What you wish people knew about Lyme disease
Last month, Lyme disease sufferer, Charlotte Pegg wrote to us to share some of the neurological symptoms that she’d been suffering from. She was keen to raise awareness of the more rare parts of the illness, so that anyone who experiences the same may spot them for what they are, preventing any delay in diagnosis: … More Case Study – patient shares rare symptoms of Lyme disease
We’re excited to announce that as part of Lyme Awareness Month, we’re looking for volunteers to organise awareness raising and fundraising ‘Lymewalks’ in their communities during May 2019. What are Lymewalks? These are walks of any size and type that aim to raise the profile of Lyme disease among family, friends and community, and to … More Lymewalks 2019 – get involved!
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages
The NICE Guidelines research recommendations can be read in full here Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to … More The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES
This September Rob Berridge ran the Windsor Half Marathon and raised over £700 for Caudwell LymeCo. He became the very first of a growing number of fundraisers who are volunteering to run marathons in aid of Lyme disease research. The money Rob raised will be spent on desperately needed research into Lyme disease. Lyme has … More Thank you to our first marathon runner!