Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing

Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing

Case Study – patient shares rare symptoms of Lyme disease

Last month, Lyme disease sufferer, Charlotte Pegg wrote to us to share some of the neurological symptoms that she’d been suffering from. She was keen to raise awareness of the more rare parts of the illness, so that anyone who experiences the same may spot them for what they are, preventing any delay in diagnosis: … More Case Study – patient shares rare symptoms of Lyme disease

Quality standards for Lyme disease treatment and correcting drug dosages

Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages

The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

The NICE Guidelines research recommendations can be read in full here  Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to … More The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES