We’re excited to tell you about a new virtual challenge event that we’re launching to help raise money for Lyme disease research. From 1 July to 30 September 2020, we’re encouraging our supporters to Walk, Ride or Climb for Lyme in a virtual challenge to help us keep on the path for change. What’s it … More Walk, Ride or Climb For Lyme
Our charity’s mission is to fund research which finds a more accurate test for Lyme disease, and treatment that is able to cure every patient, all to be available on the NHS. To highlight this need for research further, and to give our followers the chance to pose some questions and learn more, we organised … More Watch our Q&A video with a Lyme disease researcher – your questions answered
For many Lyme sufferers, antibiotic treatment alone is not enough to cure all symptoms, and many are thought to suffer from food insensitivities or autoimmune issues which are either triggered by, or affected by the infection. But with a ton of information to sift through on the internet and sometimes conflicting information and experiences to … More The role and impact of diet in managing Lyme disease
Though many will be aware of the physical impact Lyme disease can have on a body, there is not always as much focus given to the psychological impact of dealing with a chronic illness. As part of our Lyme Awareness month content, and during Mental Health Awareness Week, we are shining a light on this … More Guest Blog: 5 tips from a counsellor on managing your mental health when chronically ill
A study on the incidence of new cases and the demographics of Lyme disease patients in the UK has just been published. Like the paper published by Cairns et al in the Summer of 2019, it provides evidence of increasing annual incidence of Lyme disease, and that the number of cases diagnosed in primary care … More New study finds UK Lyme disease cases diagnosed in primary care to be significantly higher than lab confirmed cases
We hope that this finds you and your family safe and well. We know you will have received lots of communications and information from all sorts of organisations over the past couple of weeks, so we won’t take up too much of your time. We simply wanted to share some information on Lyme disease and the coronavirus which … More Charity update – how we’re working through the coronavirus pandemic
Nikki Ellis from Staffordshire is the subject of our most recent blog. After suffering from chronic illness for 12 years, she has at times been bedbound, requiring the help and support of her family to care for her daughter. After struggling to get a concrete diagnosis and experiencing mental health problems because of her illness, … More How a chronically ill patient found purpose and employment through her illness
After the success of last year, we’re once again looking for supporters to organise ‘Lymewalks’ in their communities during Lyme Awareness Month in May. What are Lymewalks? These are walks of any size and type that aim to raise the profile of Lyme disease among family, friends and community, and to raise money towards research … More Lymewalks 2020 – get involved!
In this week’s blog we’re delighted to introduce Toby, a singer/songwriter from Cambridge who is releasing a charity single that will benefit Caudwell LymeCo and other UK Lyme charities. Toby, 25, has suffered with Lyme disease for over 13 years and feels passionate about raising awareness and contributing towards research that will improve diagnosis and … More Meet Toby – the Lyme disease sufferer releasing a charity single
In November 2019, a two day workshop was held in Liverpool by the NIHR’s Health Protection Research Unit in Emerging and Zoonotic infections (HPRU EZI) to review the research that has taken place on tick-borne diseases in the last couple of years, and identify gaps in knowledge and areas of research for future focus. The … More Report from RIPL and HPRU on the Lyme disease research workshop
2019 has been an extremely busy year for the charity, and for the world of Lyme in general. With new studies being published, a high profile for a time in the national media, and news of UK research on the horizon, many exciting things have happened and 2020 looks set to be a game changer … More Our 2019 in Review
We are delighted to announce that businesswoman, author and TV personality, Lara Asprey, has become an ambassador for Caudwell LymeCo Charity. She is a dating and relationship expert and CEO & Founder of Asprey Introductions, a matchmaking and introduction agency. In 2018 she became the face of brand new dating show ‘The Ultimate Matchmaker’ now … More Introducing our new Charity Ambassador
Over the last few months, there has been a number of reports, papers, and studies announced on research for improving diagnosis and treatment of Lyme disease. In this latest blog we’ll aim to give an overview of some of these studies. Disulfiram for treatment of persisting symptoms Figures from the U.S suggest around 10% – … More Round up on recent Lyme research news
Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing
There can be a lot of misunderstanding around Lyme disease – such as what it is, and how it affects people, both in the short and long term. We recently asked our social media followers what they wish other people knew about Lyme disease, and we got a wide range of responses. Some wished for … More What you wish people knew about Lyme disease
It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?
The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published
For this week’s blog feature, we’re sharing the story of Lyme patient Tracy Dopson, who wrote in to the charity with this piece on her experiences, and what she wants others to know. If you’re often asked by friends and family how you are, and you don’t know how to reply, or how to explain … More Living with Lyme disease…….and I’M FINE!
If your child has been diagnosed with Lyme disease, you may be worried about how long they will remain ill or whether there may be any permanent effects. Most people who catch Lyme disease, and are treated for it promptly, do make a full recovery. This article gives you practical advice on how to look … More How to look after a child with Lyme disease
Catching any illness when you’re pregnant is frightening. Once you start reading about Lyme disease and finding more stories on the internet, this may ramp up to feeling terrified. Don’t Panic! The most important thing to remember is that treatment exists. The Centers for Disease Control and Prevention (CDC) in America has also addressed the … More What to do if you catch Lyme disease when you’re pregnant
