Our charity’s mission is to fund research which finds a more accurate test for Lyme disease, and treatment that is able to cure every patient, all to be available on the NHS. To highlight this need for research further, and to give our followers the chance to pose some questions and learn more, we organised … More Watch our Q&A video with a Lyme disease researcher – your questions answered
A study on the incidence of new cases and the demographics of Lyme disease patients in the UK has just been published. Like the paper published by Cairns et al in the Summer of 2019, it provides evidence of increasing annual incidence of Lyme disease, and that the number of cases diagnosed in primary care … More New study finds UK Lyme disease cases diagnosed in primary care to be significantly higher than lab confirmed cases
We hope that this finds you and your family safe and well. We know you will have received lots of communications and information from all sorts of organisations over the past couple of weeks, so we won’t take up too much of your time. We simply wanted to share some information on Lyme disease and the coronavirus which … More Charity update – how we’re working through the coronavirus pandemic
In this week’s blog we’re delighted to introduce Toby, a singer/songwriter from Cambridge who is releasing a charity single that will benefit Caudwell LymeCo and other UK Lyme charities. Toby, 25, has suffered with Lyme disease for over 13 years and feels passionate about raising awareness and contributing towards research that will improve diagnosis and … More Meet Toby – the Lyme disease sufferer releasing a charity single
In November 2019, a two day workshop was held in Liverpool by the NIHR’s Health Protection Research Unit in Emerging and Zoonotic infections (HPRU EZI) to review the research that has taken place on tick-borne diseases in the last couple of years, and identify gaps in knowledge and areas of research for future focus. The … More Report from RIPL and HPRU on the Lyme disease research workshop
We are delighted to have been selected to take part in this year’s Big Give Christmas Challenge! It’s the UK’s biggest online match funding campaign, which helps many charities raise millions each year towards worthy causes, and gives donors an amazing opportunity to double their donation towards the causes they care about. How does it work? … More We’re in the Big Give Challenge and it starts tomorrow!
Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing
It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages
The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines