There can be a lot of misunderstanding around Lyme disease – such as what it is, and how it affects people, both in the short and long term. We recently asked our social media followers what they wish other people knew about Lyme disease, and we got a wide range of responses. Some wished for … More What you wish people knew about Lyme disease
It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?
As many of you know, our founder and spokesman John Caudwell has given regular television and newspaper interviews on the topic of Lyme disease. He found the courage to open up about the suffering that this disease has caused eleven members of his family. He has even shared the heartbreaking story of his son Rufus, … More A good news story – help us spread the message
John Caudwell and Veronica Hughes met Professor Chris Whitty and scientific colleagues at the Department of Health on 23rd May 2016. The purpose of the meeting was to discuss the independent enquiry into Lyme disease which Health Secretary Jeremy Hunt, and C.E.O. of NHS England Simon Stevens, have asked Professor Whitty to commission following their … More The UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty
BY JOHN CAUDWELL My Lyme Chief Executive, Veronica Hughes and I met Health Secretary Jeremy Hunt and the CEO of NHS England Simon Stevens to talk about the current problems surrounding lack of diagnosis, lack of treatment and therefore lack of care for LymeCo Disease patients in the UK. I spoke about the poor performance … More Meeting with Jeremy Hunt and Simon Stevens
A Daily Mail article published on 12th December 2015 quotes John Caudwell as saying: “I am crystal clear this is one of the most dangerous illness to mankind today. Lyme disease is damaging hundreds of thousands of lives.” John’s very brave decision to put his family’s suffering in the limelight to help others is given … More Daily Mail Report