The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published
For this week’s blog feature, we’re sharing the story of Lyme patient Tracy Dopson, who wrote in to the charity with this piece on her experiences, and what she wants others to know. If you’re often asked by friends and family how you are, and you don’t know how to reply, or how to explain … More Living with Lyme disease…….and I’M FINE!
So you have been diagnosed with Lyme disease, you have had a course of antibiotics, and you still feel ill? This happens to a lot of people who catch Lyme disease. If you don’t know what to do, read on. 1. Ask your doctor if you need a second course of antibiotics Return to your … More What to do if you still feel ill after your Lyme disease treatment has finished
Last month, Lyme disease sufferer, Charlotte Pegg wrote to us to share some of the neurological symptoms that she’d been suffering from. She was keen to raise awareness of the more rare parts of the illness, so that anyone who experiences the same may spot them for what they are, preventing any delay in diagnosis: … More Case Study – patient shares rare symptoms of Lyme disease
New objectives on Lyme care NICE has launched a new project to develop a quality standard that will define areas for quality improvement for Lyme disease care on the NHS, and Caudwell LymeCo’s Chief Executive Veronica Hughes was asked to join the committee as a specialist on Lyme disease. The committee, whose members included doctors, … More What is the Quality Standard for Lyme disease?
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages
Recently, philanthropist John Caudwell announced that he was offering to donate “a million pounds plus” to be used for Lyme disease research, and reminded everyone that he hopes his own philanthropy will inspire others to do their own part, too. 22-year old biology graduate George Peirson has vowed to do just that. Not one to … More “Ironman” George raises money for research after brother struck down by Lyme disease
If you’re like most people, you’ve probably shopped online from Amazon now and then. A few of us here at Caudwell LymeCo buy almost everything from Amazon! Now you can make a difference by funding Lyme disease research with the things you’re already buying. Follow the instructions below. The Amazon Smile Foundation will donate 0.5%, … More Use Amazon Smile to support the Caudwell LymeCo Research Fund
This April, seven volunteers will become the first in the UK ever to run marathons to raise money for Lyme disease research. All the runners are raising donations for the Caudwell LymeCo Charity research fund, and six of the seven have never run marathons before. “These runners are making a real difference by supporting Caudwell … More The first year UK marathon runners raise money for Lyme disease research
A visit to the Health Secretary and CEO of NHS England On 29th February 2016, John Caudwell and Veronica Hughes hand-delivered a selection of thirteen patient case studies to health Secretary Jeremy Hunt and to Simon Stevens, C.E.O. of NHS England. These case studies were selected to demonstrate the serious lack of care available for … More Giving Lyme Patients a Voice