Join the Caudwell ‘Lobby for Lyme research funding’ email campaign

Lyme disease patients – Please support John Caudwell in his lobbying campaign for Lyme disease research. This page helps you compose an email to your MP to increase the pressure.

Copy our template below and personalise it if you can, with two sentences about your symptoms or how your life is affected by Lyme disease.

Friends and family writing on behalf of a Lyme disease patient – Follow this link to a different template adapted for you.

Please send an email to your Local MP, and copy in Jeremy Hunt, your local newspaper, and national newspapers. 

Contact details below:

  1. Look up your MP’s email address here: MPs UK parliament
  2. Jeremy Hunt – mb-sofs@dh.gsi.gov.uk
  3. Choose some national media outlets from this list of emails – Contact a news organisation
  4. Find your local newspaper (or other media outlets) here – Media Info

Email your MP!

[Your full name and address including postcode. This is essential for your MP to accept your email.]

Dear [name of your MP]

Please lobby the Health Secretary to accept John Caudwell’s proposal and demand for funding for Lyme Disease research.

I am one of thousands of people in Britain who are suffering from Lyme Disease. It is a disease that is  destroying the lives of thousands of once healthy and happy people across the country. We patients have been abandoned by the NHS, which the Department of Health has failed to properly equip with the knowledge and resources required to help Lyme Disease victims.

Up to a third of people who catch Lyme disease still suffer incurable symptoms after treatment. Lyme Disease can strike anyone at any time. It is an infection spread by tick bites that attacks the nerves, the brain, heart, joints, and eyes, and can also cause skin rashes. It is one of the commonest and fastest-growing diseases in Europe, spreading at a rate of 14% per year. Currently there is no effective monitoring system in place to even accurately determine how many people have the disease. Symptoms are often caught late or missed entirely, due to a lack of medical knowledge.

Despite this, successive governments have repeatedly failed to properly fund an effective programme of research and the search for ways to improve treatment. The new NICE guidelines, published in April, highlight the appalling shortage of research done into this disease. Since then we have heard little to nothing from the government about how they plan to tackle this growing public health crisis.

Many thousands of us in Britain with chronic Lyme disease need to get back to work, or school, or bringing up their children. As long as this inaction continues, there is no hope for us.

Please call on Jeremy Hunt to finally take the action needed and offer real help to Lyme Disease victims. We need government funding for research so people with Lyme disease can get better, and prevent other people suffering the same, destructive disease.

Yours sincerely,

[Your name.]

Thank you for joining the campaign. Please SHARE THIS LINK TO THE EMAIL TEMPLATE FOR FRIENDS AND FAMILY and ask them to send an email, too.

Together we can make a difference!

Advertisements