PRESS RELEASE: New website identifies 12 dangers of the British Countryside

PRESS RELEASE 12 May 2017 NEW WEBSITE IDENTIFIES 12 DANGERS OF THE BRITISH COUNTRYSIDE A new website has been launched to educate the British public about the serious dangers the countryside contains, with twelve being highlighted for particular attention. Enjoythecountryside.com sees two non-profit organisations, Caudwell LymeCo charity and Lyme Disease UK, collaborate to raise awareness … More PRESS RELEASE: New website identifies 12 dangers of the British Countryside

INITIAL SURVEY RESULTS: Lyme disease co-infections

Many Lyme disease patients have other chronic infections, which seem to play a significant role in their symptoms and may be the reason why some patients are very difficult to cure. These various infections make up the chronic condition Mr. John Caudwell has nicknamed “LymeCo”. A co-infection survey Caudwell Lyme Disease is running the first … More INITIAL SURVEY RESULTS: Lyme disease co-infections

NICE Guidelines Committee for Lyme Disease

Caudwell Lyme Disease CEO, Veronica Hughes, has been offered a position as a lay member of the NICE guidelines committee for Lyme disease. The committee will meet regularly for approximately the next two years, to evaluate and discuss published research on Lyme disease and use this as the basis for new, evidence-based treatment guidelines for … More NICE Guidelines Committee for Lyme Disease

The UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty

John Caudwell and Veronica Hughes met Professor Chris Whitty and scientific colleagues at the Department of Health on 23rd May 2016. The purpose of the meeting was to discuss the independent enquiry into Lyme disease which Health Secretary Jeremy Hunt, and C.E.O. of NHS England Simon Stevens, have asked Professor Whitty to commission following their … More The UK government’s Independent Lyme disease reviews: a discussion with Prof. Chris Whitty

A visit to the Rare and Imported Pathogens Laboratory

John Caudwell and Veronica Hughes visited Public Health England’s scientific campus at Porton Down in Wiltshire, including a tour of the Rare and Imported Pathogens Laboratory (RIPL) where the specialist Lyme disease testing for England and Wales is carried out at the request of NHS doctors. We met Professor Derrick Crook, Director of PHE’s National … More A visit to the Rare and Imported Pathogens Laboratory

SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS

Caudwell LymeCo charity ran a survey of UK Lyme disease patients from February to April, 2016. The survey asked patients about the care they had received for their Lyme disease on the NHS. We have produced a PDF document which gives the aggregated responses to each question in the survey. Please note: The information and … More SURVEY RESULTS: Lyme disease diagnosis and treatment on the NHS

SURVEY RESULTS: UK Lyme patients’ spending on herbs and supplements

Caudwell Lyme conducted a small survey in 2016, on Lyme patients’ spending on nutritional supplements and herbal medications, in collaboration with Britain’s largest patient support group, Lyme Disease UK. Please note: The information and contents of this report may not be reproduced or quoted without acknowledging Caudwell LymeCo charity as the source. The responses reported … More SURVEY RESULTS: UK Lyme patients’ spending on herbs and supplements

Lyme Protest in May

The following press release was received by Caudwell Lyme Disease. This event is not organised by the charity. Press Release On May 24th, Lady Mar will be supporting Lyme sufferers at Parliament Square in London.  They will be protesting about the current inadequate NHS test for Lyme: poor diagnosis by GP’s and insufficient treatment for … More Lyme Protest in May

Freedom of Information request January 2016

Caudwell Lyme Disease submitted a Freedom of Information request to Public Health England in January 2016. Below is the response received. *** 26 February 2016 Dear Ms Hughes Re: Lyme Disease testing I refer to your freedom of information request, dated 1 February 2016, and made via whatdotheyknow.com in which you asked a number of … More Freedom of Information request January 2016