Meet Toby – the Lyme disease sufferer releasing a charity single

February 13, 2020

In this week’s blog we’re delighted to introduce Toby, a singer/songwriter from Cambridge who is releasing a charity single that will benefit Caudwell LymeCo and other UK Lyme charities. Toby, 25, has suffered with Lyme disease for over 13 years and feels passionate about raising awareness and contributing towards research that will improve diagnosis and … More Meet Toby – the Lyme disease sufferer releasing a charity single

Report from RIPL and HPRU on the Lyme disease research workshop

January 24, 2020

In November 2019, a two day workshop was held in Liverpool by the NIHR’s Health Protection Research Unit in Emerging and Zoonotic infections (HPRU EZI) to review the research that has taken place on tick-borne diseases in the last couple of years, and identify gaps in knowledge and areas of research for future focus. The … More Report from RIPL and HPRU on the Lyme disease research workshop

Our 2019 in Review

December 18, 2019

2019 has been an extremely busy year for the charity, and for the world of Lyme in general. With new studies being published, a high profile for a time in the national media, and news of UK research on the horizon, many exciting things have happened and 2020 looks set to be a game changer … More Our 2019 in Review

Introducing our new Charity Ambassador

December 4, 2019

We are delighted to announce that businesswoman, author and TV personality, Lara Asprey, has become an ambassador for Caudwell LymeCo Charity. She is a dating and relationship expert and CEO & Founder of Asprey Introductions, a matchmaking and introduction agency. In 2018 she became the face of brand new dating show ‘The Ultimate Matchmaker’ now … More Introducing our new Charity Ambassador

We’re in the Big Give Challenge and it starts tomorrow!

December 2, 2019

We are delighted to have been selected to take part in this year’s Big Give Christmas Challenge! It’s the UK’s biggest online match funding campaign, which helps many charities raise millions each year towards worthy causes, and gives donors an amazing opportunity to double their donation towards the causes they care about. How does it work? … More We’re in the Big Give Challenge and it starts tomorrow!

Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing

October 10, 2019

Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing

Meeting with the Department of Health & Social Care to discuss Lyme disease research

September 27, 2019

Yesterday, as we marked three years to the day since Caudwell LymeCo officially became a charity, we met with Chief Scientific Adviser, Professor Chris Whitty at the Department of Health and Social Care, to discuss their future plans for research into Lyme disease. and how we and our founder, John Caudwell can support these plans. Lyme … More Meeting with the Department of Health & Social Care to discuss Lyme disease research

Reactions to the BMJ Open study on Lyme disease – and what’s next?

August 7, 2019

It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?

NICE Quality Standard for Lyme disease now published

July 11, 2019

The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published

Photo by Swangershaft (Wikimedia commons)

What to do if you catch Lyme disease when you’re pregnant

June 3, 2019

Catching any illness when you’re pregnant is frightening. Once you start reading about Lyme disease and finding more stories on the internet, this may ramp up to feeling terrified. Don’t Panic! The most important thing to remember is that treatment exists. The Centers for Disease Control and Prevention (CDC) in America has also addressed the … More What to do if you catch Lyme disease when you’re pregnant

Ten ways to beat the blood suckers when you go camping this summer

May 8, 2019

As it’s Lyme Awareness Month, the weather is improving, and thoughts may be turning to summer holidays, this week’s blog features our top ten tips on how to best protect yourself from ticks whilst camping. Camping holidays are a fantastic way to enjoy our beautiful countryside and bring families or friends together. You can give … More Ten ways to beat the blood suckers when you go camping this summer

Progress needed in patient treatment under the NICE guideline

April 17, 2019

Caudwell LymeCo has just run a survey of over 200 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we reported were based on the responses given by patients and we have not independently verified them with their doctors or diagnostic laboratories. … More Progress needed in patient treatment under the NICE guideline

Comments by Lyme disease patients on the NICE guideline

April 17, 2019

Our recent survey asked patients about their experience of diagnosis and treatment for Lyme disease since the NICE guideline has been published. It showed that there have been some improvements – but there are some areas which could be much better. We decided to make the last question a free text entry, so people could … More Comments by Lyme disease patients on the NICE guideline

NHS Quality Standard for Lyme disease at Second Stage

April 9, 2019

Last week, the QSAC (Quality Standard Assurance Committee) for Lyme disease met for the second and final meeting on the quality statements that will be provided for doctors, nurses, and other clinical staff when dealing with Lyme disease. The aim of quality statements A “quality standard” contains brief action-focused statements about a specific patient experience … More NHS Quality Standard for Lyme disease at Second Stage

LymeCo Survey Results: Is the NICE Guideline being followed?

April 3, 2019

The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based … More LymeCo Survey Results: Is the NICE Guideline being followed?