We’re in the Big Give Christmas Challenge 2019!

We are delighted to have been selected to take part in this year’s Big Give Christmas Challenge!

It’s the UK’s biggest online match funding campaign, which helps many charities raise millions each year towards worthy causes, and gives donors an amazing opportunity to double their donation towards the causes they care about.

***Please ensure that you donate via the button below, which will take you to the Big Give website. Do not click on the DONATE NOW button on our website as these donations will not be eligible to be doubled***

How does it work?

We’re aiming to raise £4,000 towards life-changing Lyme disease research during the challenge, which runs from 12pm Tuesday 3 December to 12pm Tuesday 10 December 2019.

Every donation made via our special Big Give weblink between those dates will be doubled*.

So if you donate £10, it becomes worth £20. If you donate £25, it becomes worth £50, and so on.

We need the support of those passionate about our mission to donate whatever they can and help raise £2,000, which will be matched by pledges of £2,000 already secured from generous donors and a charity champion.

Why donate?

Too often, cases of Lyme disease go missed or undiagnosed due to the lack of a truly reliable diagnostic test for the disease. There is also no way to test if treatment has worked, and a patient has been cured.

We want to help improve the lives of the thousands of people who are desperately ill with Lyme disease and either unaware of the true cause of their illness, or who have received inadequate testing and treatment.

We also want to ensure that those who become infected with the disease in the future are diagnosed and treated promptly, with a reliable and accurate test and treatment protocols that work for everyone.

Scroll down to read some real life stories which demonstrate the impact that unreliable testing can have on some patients.

We aim to fund desperately needed research that helps ensure all UK Lyme patients are diagnosed, treated and cured on the NHS, and we believe this starts with a truly reliable diagnostic test.

Help us make a difference to Lyme sufferers, and double your impact at the same time.

Christmas is a time of giving, where gestures of support – big or small – take on so much more meaning. We’re asking for our supporters to dig deep and give whatever they can to this campaign, in the knowledge that their donation will be doubled!

How do I donate?

You can donate online here, or via any of the donation buttons on this page.

The campaign starts at 12pm midday on Tuesday 3 December and runs until 12pm midday on Tuesday 10 December.

Donations must be made via our Big Give webpage within this period in order to be doubled. Donations made outside of these times and dates (or on our Caudwell LymeCo webpage) will still come to the charity, but won’t be doubled.

What if I can’t donate online?

If you don’t have access to donate online, and you don’t have a family member of friend that can help you donate via the webpage, then please give us a call on 01630 620523 or email lymecocharity@caudwell.com, and we’ll try and work out an option for you.

Patient Case Study

Adam’s Story

Adam never presented with a typical bull’s eye rash, and so his case was at first dismissed as Lyme disease. The only place that his family think he could have been bitten by a tick was in their back garden.

Adam first positive test not acted upon because the paediatrician didn’t believe the symptoms matched Lyme disease, or that the test result was reliable.

They thought his results weren’t indicative of some kind of active infection, not related to Lyme disease. He experienced extreme behavioural changes, regressing to toddler stage, and acting out of character, at times physically attacking the family.

His mum Amy says:

After four months of undiagnosed illness, Adam began developing severe neurological symptoms due to the Lyme disease infection. At the end of the week where the paediatrician dismissed his positive test result, he woke up screaming with full facial paralysis.

It was at this point that they finally diagnosed him with Lyme disease and encephalitis (swollen brain) and treated him with intravenous antibiotics.

However, the doctors didn’t give Adam the full treatment as recommended in the NICE Guideline, and we had to fight for further antibiotics. We struggled to get this because there is no test for cure for Lyme disease. In the end, we did get the treatment he needed but we have had to pay for some care privately. Adam has had to re-learn activities such as reading and swimming back to his age level.

If doctors had had a more reliable testing process and better knowledge of this disease, Adam would have been treated sooner and perhaps experienced less severe symptoms. We need doctors to be more well informed and for a test that looks at more than just an antibody response, which is how the current test works

Kirsty’s Story

I was bitten on holiday in Portugal and developed a bull’s eye rash. My GP diagnosed Lyme disease and prescribed a course of Doxycycline, but I still felt unwell after treatment and despite being referred to the local hospital, wasn’t receiving further help.

The hospital insisted on testing to prove I had a current Lyme infection. They reversed my diagnosis after a negative result and tried to discharge me back to my GP. My records were amended to say that I had Chronic Fatigue Syndrome and I was told that I had never had Lyme disease. I contacted Caudwell LymeCo for advice and they were able to give me the information I needed to get further treatment and testing, which reinstated my diagnosis. But I am still suffering from the effects of the disease today, and my life has changed so much.

If the doctors had followed the Guideline or if the tests hadn’t returned a false negative, then I may not have received the delay in treatment and the development of these longer term symptoms.”

Rachael’s Story

“My Lyme diagnosis took eight years to reach, by which point the disease had caused absolute havoc in my body.

But, if the correct research and training for NHS doctors was in place, my hope is that others will not have to suffer like I did and can be tested and treated immediately.”

*Donations will be doubled until matched funding of £2,000 is exhausted.