There can be a lot of misunderstanding around Lyme disease – such as what it is, and how it affects people, both in the short and long term. We recently asked our social media followers what they wish other people knew about Lyme disease, and we got a wide range of responses. Some wished for … More What you wish people knew about Lyme disease
It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?
The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published
For this week’s blog feature, we’re sharing the story of Lyme patient Tracy Dopson, who wrote in to the charity with this piece on her experiences, and what she wants others to know. If you’re often asked by friends and family how you are, and you don’t know how to reply, or how to explain … More Living with Lyme disease…….and I’M FINE!
Last week, the QSAC (Quality Standard Assurance Committee) for Lyme disease met for the second and final meeting on the quality statements that will be provided for doctors, nurses, and other clinical staff when dealing with Lyme disease. The aim of quality statements A “quality standard” contains brief action-focused statements about a specific patient experience … More NHS Quality Standard for Lyme disease at Second Stage
Last month, Lyme disease sufferer, Charlotte Pegg wrote to us to share some of the neurological symptoms that she’d been suffering from. She was keen to raise awareness of the more rare parts of the illness, so that anyone who experiences the same may spot them for what they are, preventing any delay in diagnosis: … More Case Study – patient shares rare symptoms of Lyme disease
We’re excited to announce that as part of Lyme Awareness Month, we’re looking for volunteers to organise awareness raising and fundraising ‘Lymewalks’ in their communities during May 2019. What are Lymewalks? These are walks of any size and type that aim to raise the profile of Lyme disease among family, friends and community, and to … More Lymewalks 2019 – get involved!
Our sincere thanks go to Karen & Hazel Watkins for hosting ‘Ladies in the LymeLight’ – a spectacular event which raised £2,215 for Caudwell LymeCo. The night was a celebration of Herefordshire women filled with fun, fizz and sparkle, held in memory of beautiful Fizzy Watkins, daughter of Karen and niece of Hazel, who sadly … More ‘Ladies in the Lymelight’ Fundraising Success
As we begin to rev up for an exciting year ahead, we’ve been looking back at the charity’s successes of 2018, and the important moments within the Lyme disease community. Read on for our highlights, and please share your own with us at email@example.com. Jan 2018 The Lyme world was still processing the findings of … More Our 2018 in Review
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages