Nikki Ellis from Staffordshire is the subject of our most recent blog. After suffering from chronic illness for 12 years, she has at times been bedbound, requiring the help and support of her family to care for her daughter. After struggling to get a concrete diagnosis and experiencing mental health problems because of her illness, … More How a chronically ill patient found purpose and employment through her illness
After the success of last year, we’re once again looking for supporters to organise ‘Lymewalks’ in their communities during Lyme Awareness Month in May. What are Lymewalks? These are walks of any size and type that aim to raise the profile of Lyme disease among family, friends and community, and to raise money towards research … More Lymewalks 2020 – get involved!
In this week’s blog we’re delighted to introduce Toby, a singer/songwriter from Cambridge who is releasing a charity single that will benefit Caudwell LymeCo and other UK Lyme charities. Toby, 25, has suffered with Lyme disease for over 13 years and feels passionate about raising awareness and contributing towards research that will improve diagnosis and … More Meet Toby – the Lyme disease sufferer releasing a charity single
In November 2019, a two day workshop was held in Liverpool by the NIHR’s Health Protection Research Unit in Emerging and Zoonotic infections (HPRU EZI) to review the research that has taken place on tick-borne diseases in the last couple of years, and identify gaps in knowledge and areas of research for future focus. The … More Report from RIPL and HPRU on the Lyme disease research workshop
2019 has been an extremely busy year for the charity, and for the world of Lyme in general. With new studies being published, a high profile for a time in the national media, and news of UK research on the horizon, many exciting things have happened and 2020 looks set to be a game changer … More Our 2019 in Review
We are delighted to announce that businesswoman, author and TV personality, Lara Asprey, has become an ambassador for Caudwell LymeCo Charity. She is a dating and relationship expert and CEO & Founder of Asprey Introductions, a matchmaking and introduction agency. In 2018 she became the face of brand new dating show ‘The Ultimate Matchmaker’ now … More Introducing our new Charity Ambassador
We are delighted to have been selected to take part in this year’s Big Give Christmas Challenge! It’s the UK’s biggest online match funding campaign, which helps many charities raise millions each year towards worthy causes, and gives donors an amazing opportunity to double their donation towards the causes they care about. How does it work? … More We’re in the Big Give Challenge and it starts tomorrow!
Over the last few months, there has been a number of reports, papers, and studies announced on research for improving diagnosis and treatment of Lyme disease. In this latest blog we’ll aim to give an overview of some of these studies. Disulfiram for treatment of persisting symptoms Figures from the U.S suggest around 10% – … More Round up on recent Lyme research news
Yesterday, Science Media Centre held a briefing for scientists and journalists to discuss the state of the evidence on the number of UK Lyme disease cases, and the controversy around the tests and diagnosis. The meeting was instigated following concerns around the accuracy of the study published back in July that found cases of Lyme … More Claims that “most Britons who think they have Lyme disease actually suffer from chronic fatigue syndrome” further prove the need for accurate testing
Yesterday, as we marked three years to the day since Caudwell LymeCo officially became a charity, we met with Chief Scientific Adviser, Professor Chris Whitty at the Department of Health and Social Care, to discuss their future plans for research into Lyme disease. and how we and our founder, John Caudwell can support these plans. Lyme … More Meeting with the Department of Health & Social Care to discuss Lyme disease research
There can be a lot of misunderstanding around Lyme disease – such as what it is, and how it affects people, both in the short and long term. We recently asked our social media followers what they wish other people knew about Lyme disease, and we got a wide range of responses. Some wished for … More What you wish people knew about Lyme disease
It’s now been one week since the BMJ Open published a study based on the records from a GP medical database of 8.4 million people from between 2001 and 2012, that ultimately suggested a much higher number of annual cases of Lyme disease than in previous estimates. It’s likely that you saw the news and … More Reactions to the BMJ Open study on Lyme disease – and what’s next?
The NICE Quality Standard for Lyme disease was published yesterday (10th July 2019). The quality standard covers diagnosing and managing Lyme disease in people of all ages. It also includes raising public awareness about prevention. It aims to work alongside the NICE Guideline for Lyme disease, helping to improve care of Lyme patients and increase … More NICE Quality Standard for Lyme disease now published
For this week’s blog feature, we’re sharing the story of Lyme patient Tracy Dopson, who wrote in to the charity with this piece on her experiences, and what she wants others to know. If you’re often asked by friends and family how you are, and you don’t know how to reply, or how to explain … More Living with Lyme disease…….and I’M FINE!
Last week, the QSAC (Quality Standard Assurance Committee) for Lyme disease met for the second and final meeting on the quality statements that will be provided for doctors, nurses, and other clinical staff when dealing with Lyme disease. The aim of quality statements A “quality standard” contains brief action-focused statements about a specific patient experience … More NHS Quality Standard for Lyme disease at Second Stage
Last month, Lyme disease sufferer, Charlotte Pegg wrote to us to share some of the neurological symptoms that she’d been suffering from. She was keen to raise awareness of the more rare parts of the illness, so that anyone who experiences the same may spot them for what they are, preventing any delay in diagnosis: … More Case Study – patient shares rare symptoms of Lyme disease
We’re excited to announce that as part of Lyme Awareness Month, we’re looking for volunteers to organise awareness raising and fundraising ‘Lymewalks’ in their communities during May 2019. What are Lymewalks? These are walks of any size and type that aim to raise the profile of Lyme disease among family, friends and community, and to … More Lymewalks 2019 – get involved!
Our sincere thanks go to Karen & Hazel Watkins for hosting ‘Ladies in the LymeLight’ – a spectacular event which raised £2,215 for Caudwell LymeCo. The night was a celebration of Herefordshire women filled with fun, fizz and sparkle, held in memory of beautiful Fizzy Watkins, daughter of Karen and niece of Hazel, who sadly … More ‘Ladies in the Lymelight’ Fundraising Success
As we begin to rev up for an exciting year ahead, we’ve been looking back at the charity’s successes of 2018, and the important moments within the Lyme disease community. Read on for our highlights, and please share your own with us at firstname.lastname@example.org. Jan 2018 The Lyme world was still processing the findings of … More Our 2018 in Review
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the … More Quality standards for Lyme disease treatment and correcting drug dosages