Comments by Lyme disease patients on the NICE guideline

Our recent survey asked patients about their experience of diagnosis and treatment for Lyme disease since the NICE guideline has been published. It showed that there have been some improvements – but there are some areas which could be much better. We decided to make the last question a free text entry, so people could … More Comments by Lyme disease patients on the NICE guideline

LymeCo Survey Results: Is the NICE Guideline being followed?

The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based … More LymeCo Survey Results: Is the NICE Guideline being followed?

What to do if you still feel ill after your Lyme disease treatment has finished

So you have been diagnosed with Lyme disease, you have had a course of antibiotics, and you still feel ill? This happens to a lot of people who catch Lyme disease. If you don’t know what to do, read on. 1. Ask your doctor if you need a second course of antibiotics Return to your … More What to do if you still feel ill after your Lyme disease treatment has finished

What to do if you’ve just been diagnosed with Lyme disease

So you’ve just been diagnosed with Lyme disease. Now what? 1. Don’t panic! The amount of doom and gloom about Lyme disease on the internet may make you think you have something worse than anthrax. Just remember that more than half of people who catch Lyme disease recover completely, and even a sizeable proportion of … More What to do if you’ve just been diagnosed with Lyme disease

Survey: Is the NICE guideline for Lyme disease being followed?

Caudwell LymeCo began the year 2016, as soon as the charity was founded, by giving UK Lyme disease patients a voice with our survey of 500 people. The survey highlighted years of neglect for almost all our respondents, alarming delays in their diagnosis and, for most, insufficient treatment that left them unable to resume their … More Survey: Is the NICE guideline for Lyme disease being followed?

Warmest February weather on record triggers tick breeding season three months early

This February is set to be the warmest since records began for many parts of Britain. The mild sunny weather is not only bringing the pleasure of freakishly early spring flowers, but also starting what could feasibly be the earliest British tick breeding season in over 100 years. The tick breeding season in Britain usually … More Warmest February weather on record triggers tick breeding season three months early

What is the Quality Standard for Lyme disease?

New objectives on Lyme care NICE has launched a new project to develop a quality standard that will define areas for quality improvement for Lyme disease care on the NHS, and Caudwell LymeCo’s Chief Executive Veronica Hughes was asked to join the committee as a specialist on Lyme disease. The committee, whose members included doctors, … More What is the Quality Standard for Lyme disease?

Meet Rosie, our new fundraising manager

How long have you been working in fundraising? I’ve been a fundraiser for six years now. I started as a Fundraising Administrator at Birmingham Hippodrome, where we raised money for a programme of education and outreach work with vulnerable and hard to reach communities. I worked up to Fundraising Executive level, looking after the everyday … More Meet Rosie, our new fundraising manager