Caudwell LymeCo & Kidunk launch the Tick Detectives Initiative

As the UK navigates its way out of some of the restrictions related to COVID-19, there has been a huge surge in the popularity of outdoor summer schools, forest schools and activity programmes planned for the summer months. In response to this growth of young children and families spending more time outdoors, we’ve been working … More Caudwell LymeCo & Kidunk launch the Tick Detectives Initiative

Paper published on decision making process of GPs in diagnosing Lyme disease

This week, a new paper was published following a study to help understand the decision making process of GPs when they are presented with cases of Lyme disease. Titled ’Understanding the decision-making process of general practitioners (GPs) presented with non-specific conditions’, the study saw eight GPs from the North West of the UK presented with … More Paper published on decision making process of GPs in diagnosing Lyme disease

Watch our Q&A video with a Lyme disease researcher – your questions answered

Our charity’s mission is to fund research which finds a more accurate test for Lyme disease, and treatment that is able to cure every patient, all to be available on the NHS. To highlight this need for research further, and to give our followers the chance to pose some questions and learn more, we organised … More Watch our Q&A video with a Lyme disease researcher – your questions answered

The role and impact of diet in managing Lyme disease

For many Lyme sufferers, antibiotic treatment alone is not enough to cure all symptoms, and many are thought to suffer from food insensitivities or autoimmune issues which are either triggered by, or affected by the infection. But with a ton of information to sift through on the internet and sometimes conflicting information and experiences to … More The role and impact of diet in managing Lyme disease

Guest Blog: 5 tips from a counsellor on managing your mental health when chronically ill

Though many will be aware of the physical impact Lyme disease can have on a body, there is not always as much focus given to the psychological impact of dealing with a chronic illness. As part of our Lyme Awareness month content, and during Mental Health Awareness Week, we are shining a light on this … More Guest Blog: 5 tips from a counsellor on managing your mental health when chronically ill

Our new charity partnership with Kidunk

We are thrilled, during Lyme Awareness Month, to be announcing an exciting new charity partnership with Kidunk – the first collaboration of its kind between a UK Lyme disease charity and outdoor clothing company. Who are Kidunk? Kidunk is an award-winning company that helps to make getting kids outdoors easier with protective, breathable, and practical clothing for … More Our new charity partnership with Kidunk

What’s happening for Lyme Awareness Month

Lyme Awareness Month starts tomorrow! Check out what we’re up to! As with last year, we’ll be aiming to educate the public and raise the profile of Lyme disease with our activities during the month of May, which is the beginning of peak tick season. These activities will look a little different to last year, given the current social distancing … More What’s happening for Lyme Awareness Month

New study finds UK Lyme disease cases diagnosed in primary care to be significantly higher than lab confirmed cases

A study on the incidence of new cases and the demographics of Lyme disease patients in the UK has just been published. Like the paper published by Cairns et al in the Summer of 2019, it provides evidence of increasing annual incidence of Lyme disease, and that the number of cases diagnosed in primary care … More New study finds UK Lyme disease cases diagnosed in primary care to be significantly higher than lab confirmed cases

Charity update – how we’re working through the coronavirus pandemic

We hope that this finds you and your family safe and well. We know you will have received lots of communications and information from all sorts of organisations over the past couple of weeks, so we won’t take up too much of your time.  We simply wanted to share some information on Lyme disease and the coronavirus which … More Charity update – how we’re working through the coronavirus pandemic

What to do if you catch Lyme disease when you’re pregnant

Catching any illness when you’re pregnant is frightening. Once you start reading about Lyme disease and finding more stories on the internet, this may ramp up to feeling terrified. Don’t Panic! The most important thing to remember is that treatment exists. The Centers for Disease Control and Prevention (CDC) in America has also addressed the … More What to do if you catch Lyme disease when you’re pregnant

Ten ways to beat the blood suckers when you go camping this summer

As it’s Lyme Awareness Month, the weather is improving, and thoughts may be turning to summer holidays, this week’s blog features our top ten tips on how to best protect yourself from ticks whilst camping. Camping holidays are a fantastic way to enjoy our beautiful countryside and bring families or friends together. You can give … More Ten ways to beat the blood suckers when you go camping this summer

Progress needed in patient treatment under the NICE guideline

Caudwell LymeCo has just run a survey of over 200 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we reported were based on the responses given by patients and we have not independently verified them with their doctors or diagnostic laboratories. … More Progress needed in patient treatment under the NICE guideline

Comments by Lyme disease patients on the NICE guideline

Our recent survey asked patients about their experience of diagnosis and treatment for Lyme disease since the NICE guideline has been published. It showed that there have been some improvements – but there are some areas which could be much better. We decided to make the last question a free text entry, so people could … More Comments by Lyme disease patients on the NICE guideline

LymeCo Survey Results: Is the NICE Guideline being followed?

The guideline will be one year old in a few weeks’ time: how many doctors know what it says? Caudwell LymeCo has just run a survey of 212 UK Lyme disease patients to find out how well their doctors seemed to know and follow the NICE guideline. The survey results we report here are based … More LymeCo Survey Results: Is the NICE Guideline being followed?

What to do if you still feel ill after your Lyme disease treatment has finished

So you have been diagnosed with Lyme disease, you have had a course of antibiotics, and you still feel ill? This happens to a lot of people who catch Lyme disease. If you don’t know what to do, read on. 1. Ask your doctor if you need a second course of antibiotics Return to your … More What to do if you still feel ill after your Lyme disease treatment has finished

What to do if you’ve just been diagnosed with Lyme disease

So you’ve just been diagnosed with Lyme disease. Now what? 1. Don’t panic! The amount of doom and gloom about Lyme disease on the internet may make you think you have something worse than anthrax. Just remember that more than half of people who catch Lyme disease recover completely, and even a sizeable proportion of … More What to do if you’ve just been diagnosed with Lyme disease