Marathon runners set new record for Lyme disease research

Seven outstanding volunteers have completed marathons in aid of the Caudwell LymeCo research fund this year, setting a new record as the first people in the UK to run marathons to raise money for Lyme disease research. Together they have raised tens of thousands of pounds, which will go towards vital research to help find … More Marathon runners set new record for Lyme disease research

The first year UK marathon runners raise money for Lyme disease research

This April, seven volunteers will become the first in the UK ever to run marathons to raise money for Lyme disease research. All the runners are raising donations for the Caudwell LymeCo Charity research fund, and six of the seven have never run marathons before. “These runners are making a real difference by supporting Caudwell … More The first year UK marathon runners raise money for Lyme disease research

The NICE guideline for Lyme disease is now published

The National Institute for Health and Care Excellence has today published guidance on Lyme disease, for NHS doctors, for the first time. The official guideline can be read here. Our summary of the guideline and FAQ The 5-minute Caudwell LymeCo guide, What does the NICE guideline for Lyme disease say?can be read here. There is … More The NICE guideline for Lyme disease is now published

The All Party Parliamentary Group for Lyme disease meeting with patient representative groups

The All Party Parliamentary Group (APPG) for Lyme disease hosted a ’round table’ meeting for Lyme disease patient group representatives in the House of Commons on Tuesday 23rd January 2018. Caudwell LymeCo was represented at the meeting by the charity’s Chief Executive Veronica Hughes, to outline the charity’s requests for the parliamentary group to consider. … More The All Party Parliamentary Group for Lyme disease meeting with patient representative groups

The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

The NICE Guidelines research recommendations can be read in full hereĀ  Our version is designed to be read in 3 minutes. Are you ready? 1. Develop a “core outcome set” for studies of Lyme disease We need a standardised list of all Lyme symptoms, and a number rating to indicate severity (e.g. from 1 to … More The NICE Guidelines Lyme Research Recommendations IN 3 MINUTES

UK Government’s Independent Enquiry into Lyme Disease

December 2017 An independent enquiry into Lyme disease, commissioned by Jeremy Hunt on behalf of the Department of Health, has just been published. Origin of the Independent Enquiry Back in spring 2016, the founder and sponsor of Caudwell LymeCo Charity, John Caudwell, and the charity’s Chief Executive, Veronica Hughes, met Health Secretary Jeremy Hunt and … More UK Government’s Independent Enquiry into Lyme Disease

Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

DISCLAIMER: Caudwell LymeCo charity shares public domainĀ  information, which it believes to be reliable, in good faith. It should never replace the advice of a qualified physician with a license to practise medicine. If you believe any information on this website to be incorrect, you are invited to contact the charity using the Contact page. … More Do the Draft NICE Guidelines acknowledge chronic Lyme disease?

Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

The UK Department of Health’s recently published Independent Enquiry into Lyme disease made a variety of research recommendations. This blog post comments on these, and compares them with the research recommendations made in the Draft NICE Guidelines for Lyme Disease. Please note that comments are on the Draft version of the NICE Guidelines. The finalised … More Research Recommendations in the Government’s Independent Reviews compared to the Draft NICE Guidelines

Fundraising Triathlon for Lyme disease Research

When the Wintour family found out that one of their sons, Adam, had Lyme disease, they decided to do something constructive about it. So they organised the Bowood House Triathlon. The tireless organiser, Laura, press-ganged most members of the connected Broadhurst, Wintour and Lambton families into participating – somewhat against their will, we have been … More Fundraising Triathlon for Lyme disease Research