INITIAL SURVEY RESULTS: Lyme disease co-infections

Many Lyme disease patients have other chronic infections, which seem to play a significant role in their symptoms and may be the reason why some patients are very difficult to cure. These various infections make up the chronic condition Mr. John Caudwell has nicknamed “LymeCo”.

A co-infection survey

Caudwell Lyme Disease is running the first patient survey in the UK, to find out which co-infections Lyme disease patients have been diagnosed with. WE NEED MORE SURVEY RESPONSES!

Please complete the survey online if you have been diagnosed with Lyme disease and live in the UK.

Take the survey button

PLEASE NOTE: THIS IS FOR UK RESIDENTS. Surveys of this kind have been done in other countries already.

This is the first co-infections survey done in Britain, where co-infections are different. We do care about Lyme patients overseas too, of course, but we are trying to get new data that has never been collected before. We hope it will improve the available information about how common tick-borne and opportunistic co-infections really are in the UK, and which ones are most widespread.

survey results so far

The survey remains open, and results will be updated as they accumulate. These results are based on the first 200 respondents to the survey.

The survey is so far indicating that 94% of UK patients with Lyme disease have at least one co-infection. Despite this high level, 75% of patients who have responded to the survey so far have reported that they do NOT feel they have been fully assessed or tested for all likely co-infections.

The following co-infections are, so far, appearing to be the most common:


Opportunistic and tick-borne infections

Some of these Lyme disease co-infections are spread by ticks. Others are opportunistic infections, which may be short-lived in the healthy population but which become chronic infections in people already affected by Lyme disease whose immune systems are compromised.

Ticks carry a large variety of bacterial, viral and parasitic infections. Many of them are classified as “zoonotic” disease, in other words diseases that affect animals, yet they are able to infect humans as well and they cause similar symptoms to those they cause in animals.

Erlichia affects dogs, foxes and related animals, but also frequently infects humans bitten by ticks
Erlichia affects dogs, foxes and related animals, but also frequently infects humans bitten by ticks
What are the co-infections?

The following is a list of some of the co-infections that may affect UK Lyme disease patients:

Anaplasmosis – Anasplasma

aspergillus niger (mould infection, don’t choose if you have an allergy but not an infection)

Babesiosis – Babesia

Bartonella quintana (Trench Fever)

Bartonellosis- Bartonella

Borrelia miyamotoi

Boutonneuse fever

Brucellosis- Brucella

Chlamydia Trachomatis

Chlamydophila Pneumonia (chlamydia pneumonia)

Colorado tick fever

Coxsackie virus A

Coxsackie virus B


Eastern tick-borne Rickettsiosis

Ehrlichiosis – Ehrlichia

Epstein Barr virus

Giardia lamblia (giardiasis)

Heartland Virus

helicobacter pylori

Herpes Simplex type 1 (HSV-1) or type 2 (HSV-2)

Human herpes virus 6 (HHV6) type A or B

Human papilloma virus

Mycoplasma fermentans

Mycoplasma penetrans

Mycoplasmosis- Mycoplasma pneumonia

Parvovirus B19

Powassan virus

protomyxzoa rheumatica


Q Fever

Rickettsia conori

Rickettsia phillipi

rickettsia typhus

Rocky Mountain spotted fever




Tick Paralysis

Tick-borne encephalitis

Tickborne Relapsing Fever




West Nile virus


More information

For more detailed information on some of the more widespread tick-borne infections, please read the article Other tick-borne infections

Photograph by Michela Metcalf



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