New objectives on Lyme care NICE has launched a new project to develop a quality standard that will define areas for quality improvement for Lyme disease care on the NHS, and Caudwell LymeCo’s Chief Executive Veronica Hughes was asked to join the committee as a specialist on Lyme disease. The committee, whose members included doctors, […]
Read moreQuality standards for Lyme disease treatment and correcting drug dosages
Quality Standards news We’re delighted to inform the Lyme community that NICE is now working on a set of standards designed to drive measurable quality improvements of care for Lyme disease patients in the UK. What are quality standards?Quality Standards play an important role in helping to get guidelines adopted into common use around the […]
Read moreA good news story – help us spread the message
As many of you know, our founder and spokesman John Caudwell has given regular television and newspaper interviews on the topic of Lyme disease. He found the courage to open up about the suffering that this disease has caused eleven members of his family. He has even shared the heartbreaking story of his son Rufus, […]
Read moreCaudwell LymeCo’s 1,000 Bracelet Challenge
What is the Caudwell LymeCo Bracelet Challenge? Our challenge is simple. We want 1,000 people wearing Lyme awareness bracelets and starting conversations about Lyme disease Donate £5 for research and tell others how to keep safe. What is Lyme disease? Lyme disease can hit anyone at any time. You can catch it from the bite […]
Read more“Ironman” George raises money for research after brother struck down by Lyme disease
Recently, philanthropist John Caudwell announced that he was offering to donate “a million pounds plus” to be used for Lyme disease research, and reminded everyone that he hopes his own philanthropy will inspire others to do their own part, too. 22-year old biology graduate George Peirson has vowed to do just that. Not one to […]
Read moreUse Amazon Smile to support the Caudwell LymeCo Research Fund
If you’re like most people, you’ve probably shopped online from Amazon now and then. A few of us here at Caudwell LymeCo buy almost everything from Amazon! Now you can make a difference by funding Lyme disease research with the things you’re already buying. Follow the instructions below. The Amazon Smile Foundation will donate 0.5%, […]
Read moreMarathon runners set new record for Lyme disease research
Seven outstanding volunteers have completed marathons in aid of the Caudwell LymeCo research fund this year, setting a new record as the first people in the UK to run marathons to raise money for Lyme disease research. Together they have raised tens of thousands of pounds, which will go towards vital research to help find […]
Read moreThe first year UK marathon runners raise money for Lyme disease research
This April, seven volunteers will become the first in the UK ever to run marathons to raise money for Lyme disease research. All the runners are raising donations for the Caudwell LymeCo Charity research fund, and six of the seven have never run marathons before. “These runners are making a real difference by supporting Caudwell […]
Read moreThe NICE guideline for Lyme disease is now published
The National Institute for Health and Care Excellence has today published guidance on Lyme disease, for NHS doctors, for the first time. The official guideline can be read here. Our summary of the guideline and FAQ The 5-minute Caudwell LymeCo guide, What does the NICE guideline for Lyme disease say?can be read here. There is […]
Read moreThe All Party Parliamentary Group for Lyme disease meeting with patient representative groups
The All Party Parliamentary Group (APPG) for Lyme disease hosted a ’round table’ meeting for Lyme disease patient group representatives in the House of Commons on Tuesday 23rd January 2018. Caudwell LymeCo was represented at the meeting by the charity’s Chief Executive Veronica Hughes, to outline the charity’s requests for the parliamentary group to consider. […]
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